For 5 month now, my 3 year old daughter and me, accompany cleft patients on their long way to recovery. I was looking for them, driving to their homes to the different barangays and had gunmen following us. I brought them to different check-ups and went with them on a over 30hour journey to Manila. We rode together tricycle, multicap and jeepnis, taxi, pedicap, ferry and plane. I had support on the way and was suddenly left alone. But I had promised not to stop until all 10 patients received their first operation and they know how to get the follow up operations. (All operationa and compleat clft treatment done by NCFP). Now 5 month later all 10 patients have received their operation. One major step is done. Thank you to everyone to helped along the way. Also to the ones who had not the endurance to finish. I did learn from all of them.
Along the way I got to know patients and families very well. We shared joy and tears, laughter and sorrows. The cleft patients and families became our friends and finally our family.
My name is Jocelyn Roluna N., my husband is Wilfredo Selem N.. We have 10 children: Krystel 21, Joeffrey 19, Wendelyn 18, Jovanie 18, Jovelyn 17, Welly 15, Gerald 13, Jerome 12, Jonathan 11 and Jonas 10. Our oldest daughter graduated highschool. She is going to apply for work. She has no work experience so far, but I want her to work so she can help her brothers and sisters.
We don’t have enough money for everydays life. We live on a small island and sell the fish my husband and our sons catch. But mostly it is not enough for all of us. I have a sideline, I am a manicurist, sometimes I have service, but sometime I cannot serve because my hand cannot work for a long time. Sometimes my body and my muscles are in pain. Sometimes my in-laws have pitty on us and help but it happens only sometimes.
Most of the time we don’t have enough money. We try to save money so our kids can go to school, but it is just not enough.
This is my short story, thank you for listening and reading my story. Good day. Thank you very much. Jocelyn N.
WellyNatividad, nicknameJhimboyis 15 years oldandlives with his parentsandhis 9 siblingsonPanganganIslandin the Philippines. Thefamily incomeis very low,so thatWellysupporsthis fatherwhen fishingto feed thefamily.
Wellywas operatedas a little boyon hiscleft lip, but it was onlyinApril 2015 that he received his follow-up operation for his cleftpalate. He was brought tothe1,000kmdistantcapitalManilaby Rucksack Coach and operated fromNCFP.
JonathanNatividadis 10 years oldandlives with his parentsandhis 9siblingsonPanganganIsland in thePhilippines. In February2015 Rucksack Coach has brought him toManila, where he received a cleftlip correction. With him his two brothersJonasandWelly got operated. All operations were performed by NCFP.
Jonas Natividad 9 years old is the youngest out of 10 siblings. He had a cleftpalate operation in march 2015, together with his two brothers Jonathan and Welly. Accompanied by Rucksack Coach and operated by NCFP in Manila.
Family Ruite: Baby Leemcer Zeus, Mama June and Papa Resmeel.
They are not only beautiful to look at, they also have their heart in the right place. Four weeks we spent together in Manila. Tomorrow April 30, 2015 I will again accompany them to Manila to have their son Leemcer Zeus operated from NCFP.
Leemcer Zeus will receive his cleft lip operation next week. In three to six months, he can get his second operation on the cleft palate. His last cleft operation can be done in a few years when his permanent teeth are growing.
The young family has a long way to go. My job as Rucksack Coach was to strengthen them for their future path. And they are incredibly strong and so lovely.
This great photo shot was taken from the photographer Annka and assistant Melly.
End of February 2015 I traveled with 10 cleftlip-and palate patients from Bohol to Manila. 9 out of 10 have been operated so far.
Because of pneumonia Leemcer Zeus could not be operated at once. After 4 weeks in Manila, we had another x-ray done. The result brought tears to our eyes. The right lung was still infected. Surgery was again not possible. They had to wait another four weeks. The young family decided to fly home. Whether they would get the flight sponsored again was uncertain. Would they undergo again the stress of the journey??
Ms. Mel from Noordhoff Craniofacial Foundation Philippines gave the green light. Once the lungs are free, they will take care of the flight again. But the family has not even enough money for the x-ray. Having accompanied the other patients from Manila back to Pangangan, I met with Leemcer Zeus and his parents. I advanced the money for the X-ray examination and we’re all very excited to get the results.
The lungs are free !!! On thursday, April 30 2015 I will again accompany Leemcer Zeus and his parents from Bohol to Manila. In Manila Leemcer Zeus will receive a complete holistic cleft lip and palate treatment from NCFP. The complete treatment that NCFP offers is very special and unique.
*Many thanks to the Photographer Ann-Kathrin Lange for the great picture*
Holistic care. Body, mind and soul. That’s always important to me, also reagrding our cleft friends.
Bullying, staring and being laughed at, the feeling of being different or incomplete have left scars on the souls of those affected as well as with their parents and family members. Surgery is the first of many steps.
Often their self-confidence is quite low. I thought about what else could I do? With a beauty shoot, I wanted to give you all of them a very special day. Each individual should be at the center of positive attention. Getting a professional styling and make-up and having all Camaras on them. Their individual beauty is what I wanted to capture in a portrait.Continue reading →